All Ireland Institute for Hospice and Palliative Care

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Could your palliative care story help others?

Would you like to use your experience of palliative care to help others who could benefit from this care?

All Ireland Institute of Hospice and Palliative Care (AIIHPC) and the Health Service Executive (HSE) Quality Improvement Division are collaborating to produce short video clips which will highlight a wide range of palliative care experiences.

The focus of this project is specifically on the experiences of people living with a life-limiting illness, along with someone supporting them. If you are living with a life-limiting illness, and are willing to be filmed talking about your experiences, AIIHPC would like to hear from you.

Palliative care focuses on helping people of all ages to live well with an illness which is life-limiting, seeking to help them achieve the best quality of life as their illness progresses. Often people think that palliative care is just for those who have advanced cancer, but it is just as important if you are living with advanced heart or lung disease, kidney failure and other conditions, such as motor neurone disease or dementia.

The aim is to have short videos (about three minutes long) which will be available for raising awareness and understanding of palliative care and as a learning resource to promote the provision of good quality care. We want to achieve a range of experiences across different life-limiting illnesses, across all age groups from children’s palliative care through to older people, and to reflect a range of care settings – home, nursing home, hospice, hospital. We also aim to have a representation of people from different parts of the island of Ireland.

It is planned that filming will be in a place convenient to the person being cared for. The videos will be made widely available and some may be used for the annual Palliative Care Week campaign taking place across the island of Ireland from Sunday 9 to Saturday 15 September 2018.

People interested in taking part are invited to contact AIIHPC at the earliest opportunity. We are mindful that this is a very sensitive topic, which can be difficult to talk about, and a supportive environment for participants will be provided during the filming process.

To express your interest, please contact Brendan O’Hara at bohara@aiihpc.org or 00353 1 4912948 at the earliest opportunity and by Wednesday 28 March 2018. Further information is available by clicking on this link

All-Ireland Institute of Hospice and Palliative Care at Our Lady's Hospice and Care Services, Harold's Cross, Dublin 6. Tel: +353 (0)1 491 2948. Email: info@aiihpc.org