All Ireland Institute for Hospice and Palliative Care

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Top 10 Palliative Care Research Priorities

AIIHPC has participated in a UK and Ireland project, developed by the Palliative and end of life care Priority Setting Partnership initiated by Marie Curie.

Priorities1The aim was to bring patients, carers, volunteers and health and social care professionals together to identify and prioritise research questions for palliative and end of life care.

AIIHPC extracted the data for Ireland from the overall study and held a consensus workshop, independently facilitated by the James Lind Alliance, to identify the Top 10 Research Priorities for the island of Ireland

Top of the list was improving out of hours care including symptom management, counselling and advice, GP visits and 24 hour support for patients, carers and families.

The second priority was identifying the best ways of providing care in the patient’s home and how home care can be maintained for as long as possible.

The third priority concerned pain and symptom relief and which drugs are best in terms of side-effects, such as drowsiness.

To find out more about the project read the report on Palliative and End of Life Research Priority Setting Project for Northern Ireland and Republic of Ireland

A number of recommendations emerged from the priority setting work, the first of these was to engage key stakeholders in discussions on how the priorities can be realised.

A strategic planning workshop took place to enable discussion on the identified final Top 10 Research Priorities for palliative and end of life care specifically in Ireland.

 

 

All-Ireland Institute of Hospice and Palliative Care at Our Lady's Hospice and Care Services, Harold's Cross, Dublin 6. Tel: +353 (0)1 491 2948. Email: info@aiihpc.org