Strand 2 – Measurement and Evaluation
Strand 2 – Measurement and Evaluation
‘MEASUREMENT AND EVALUATION OF OUTCOMES FOR PALLIATIVE CARE’. Led by
Professor Charles Normand, Edward Kennedy Professor of Health Policy & Management, Centre for Health Policy & Management, TCD
The Measurement and Evaluation Strand (MES) will explore methodological development for palliative care research with a focus on measurement of needs, measurement of impact and evaluation of service priority and delivery. MES will develop better understanding on how best to elicit preferences and views for service users and families and will support the development of measurement tools for palliative care research. This strand will utilise evidence to examine how best to disseminate complex findings in palliative care research. The MES team shares the social justice perspective of SJS, that access to care should depend on needs and not circumstance.
WP5: Towards Improved diagnosis and symptom management in palliative care
Professor David Meagher, Consultant Psychiatrist, Department of Adult Psychiatry, Midwestern Regional Hospital, Limerick
Dr Karen Ryan, Palliative Medicine Consultant, Mater Misericordiae Hospital & St Francis Hospice & Clinical Lead for Palliative Care, HSE
Aims: To explore the relationship between various symptom domains (cognitive difficulties, mood disorder, pain, cachexia and fatigue in patients admitted to palliative care in Ireland) over the course of treatment and to identify a simple user-friendly testing procedure that allows for both applicability and efficiency in accurately identifying cognitive and mood disturbances in everyday clinical practice, and to test this in those settings to determine its appropriateness and efficacy.
WP6: Development & evaluation of a psycho-educational intervention for patients with refractory cachexia & their lay carers
Professor Sam Porter, Chair in Nursing Research, School of Nursing & Midwifery, QUB
Dr Joanne Reid, Lecturer in Cancer Nursing, School of Nursing and Midwifery, QUB
Aim: To contribute to the psychological care of palliative patients and their lay carers by helping them to understand, adapt to, and cope with the distressing consequences of the loss of appetite and change in appearance that often accompanies the last stages of life. To utilise a range of research methods, including qualitative analysis, realistic research, randomized controlled trial, and economic evaluation, in order to assist in the development of skills in the measurement and evaluation of palliative care.
WP7: Eliciting preferences for complex packages of palliative care – extension of IARE
Professor Charles Normand, Edward Kennedy Professor of Health Policy and Management, Centre for Health Policy and Management, TCD
Original IARE Investigators
Aim: To extend the evidence on patterns and determinants of preferences for palliative care services in Ireland using discrete choice experiments, and to provide a basis for methodological work on measurement of outcomes and benefits. This will provide a wider database to explore the variation in patterns of preferences within Ireland. The research will be carried out in collaboration with the IARE study teams in New York and London led by Professor Irene Higginson.
WP8: Developing & implementing a ‘System’ of structured network-wide dissemination & knowledge transfer activities
Professor W. George Kernohan, Professor of Health Research, Institute of Nursing & Health Research, School of Nursing, UU
Dr Suzanne Guerin, Centre for Disability Studies, School of Psychology, University College Dublin
Aim:To support knowledge transfer to enhance palliative care in Ireland.
Methods: The project will be focused on two key stages: (1) Adapting and validating a model of knowledge transfer and exchange (KTE) for palliative care; and (2) Implementing and evaluating the KTE model. This will be a mixed methods study. A number of case studies will be identified including at least two arising from the P.C.R.N. which will be used to evaluate and refine the KTE model.
Researcher: Lucia Prihodova
Lucia Príhodová completed her master’s degree in psychology at the University of Trnava, Slovakia. Her qualifying areas were clinical, counselling and educational psychology, and in her master thesis she explored the interactions between coping skills, hope, social support and quality of life in patients with an oncologic disease. Lucia successfully defended her PhD thesis entitled “Psychosocial and medical determinants of long-term patient outcomes” in September 2014. She is employed as a doctoral fellow on an All-Ireland Institute of Hospice and Palliative Care (AIIHPC) research project aimed at developing and implementing a system of structured based at the School of Psychology, University College Dublin.