Voices4Care members shaping palliative care development across the island of Ireland

‘It just gives you the confidence and it’s amazing… it has definitely changed my life’

Voices4Care member

‘…it has informed me that I can now have the courage to go out and do something about it’

Voices4Care member

The meaningful involvement of people with a life-limiting illness/palliative care needs (service users), their carers and communities is a core priority for All Ireland Institute of Hospice and Palliative Care (AIIHPC).

Voices4Care was set up in 2013 and this group of people is central to this engagement.

Membership of Voices4Care was renewed in 2019 and had a total of 44 members at January 2021. Members, who join on a voluntary basis, have opportunities to be part of something that can make a real difference, and influence palliative care education, research, policy and practice.

Members have opportunities to influence the work of AIIHPC and the wider palliative care arena across health and social care in both the Republic of Ireland and Northern Ireland.

Voices4Care members from across the island of Ireland are:

  • People with a life-limiting illness / palliative care needs,
  • Carers or former carers of people with palliative care needs,
  • People from the wider community interested in palliative care.

As part of the palliative care programme in Northern Ireland – Palliative Care in Partnership – their voice is central to the design and development of palliative care, as the service user and carer group in this structure. The service user and carer voice is also informing and influencing palliative care in the Republic of Ireland, for example, through involvement with the National Clinical Programme for Palliative Care.

Although AIIHPC is not currently seeking new members, we are open to having new members who have palliative care needs. If you are and are living with a life-limiting illness and are interested in becoming a member of Voices4Care, please find out more by reading the Guidance for Applicants, and completing the Voices4Care Expression of Interest Form.

If you would like to contact someone directly, please email Karen Charnley, Director, at kcharnley@aiihpc.org or alternatively call +353 (0) 1 491 2948.

Reports & Articles

The report can be viewed here
Read Janet’s story here