Shaping Palliative Care Policy Using a Human Rights-based Approach: Examining the experiences of people living in nursing homes, their families and staff during the COVID-19 pandemic.

All Ireland Institute of Hospice and Palliative Care (AIIHPC), in collaboration with the University of Limerick, is delighted to launch a research report on “Shaping Palliative Care Policy Using a Human Rights-based Approach: Examining the experiences of people living in nursing homes, their families and staff during the COVID-19 pandemic.”

This research examined the impact of the COVID-19 pandemic on the delivery of palliative care services from the perspective of rights-holders (residents, families and staff). AIIHPC wanted to give a voice to rights-holders in relation to their experience and expectations of palliative care during COVID-19, to inform policy changes in palliative care.  The research was funded by the Irish Human Rights and Equality Commission (IHREC).

We would like to acknowledge the support of our consortium members, specifically the HSE and Nursing Homes Ireland, as well as the Irish Hospice Foundation, St Vincent’s University Hospital, Tallaght University Hospital, the Decision Support Service, and members of AIIHPC’s patient/carer group, Voices4Care. The main research report is available here, and more information about the project and an accompanying infographic can be found on The Palliative Hub Professional here